The following was released by Cherry Hill Public Schools
Spring has come early at Thomas Paine Elementary School, where the students, staff, and parents are building a “Garden of Hope” to honor one of their own and help find a cure for a debilitating neurological disorder.
Julia Miller, a student in Dana Hoffman’s class at Paine, has Rett Syndrome, a disorder that predominantly affects girls.
Rett Syndrome is typically diagnosed in late infancy or early childhood as girls begin to lose acquired skills. Rett Syndrome is the leading genetic cause of severe impairment in girls and limits their ability to speak, walk, and use their hands. Despite these physical disabilities, girls with Rett Syndrome are believed to be functioning mentally at a much higher level than previously thought.
To learn more about Rett Syndrome, visit www.gp2c.org.
Julia’s mom, Tarah Miller, organized the Paine fundraiser, which has raised nearly $1,000 to date (in combination with a similar effort at the Coastline in Cherry Hill). The Paine foyer is covered in paper flowers purchased for $1 each.
All proceeds from both fundraisers will be donated to Girl Power 2 Cure, Inc., a 501c3 nonprofit dedicated to raising awareness and funds for treatments and a cure for Rett Syndrome.
“This community is so child-centered,” said Paine Principal Susan Weinman. “When you do something that benefits children, there is always a great response.”
Julia’s mom is also hoping for a great response later this spring; on Tuesday, June 18, she will host a Girl Power 2 Cure Fundraiser at the Coastline Bar and Restaurant. Tickets are $10.
